About This Episode

Unwinding Pain with Bonnie Lester. Episode 134

Chronic pain is not only debilitating, but also isolating. It can cause depression, feelings of hopelessness, and can be very difficult to treat.  Often, doctors only try to manage the symptoms. But Bonnie Lester came up with a process to unwind the pain through neuroplasticity.

When you’ve experienced something, there’s a there’s a huge difference and I often hear from the clients I have my doctor doesn’t know what it’s like to live every day in pain If they’d only know and then when I meet doctors who have had bad backs or bad necks or some other challenge They are more empathetic And more understanding, that’s for sure.

So what initially led to your issue with chronic pain?

Well, I was a 33 year old mom. I was newly remarried. I had a great relationship with my ex husband. We were co parenting, and my new husband was a great stepdad. I just purchased a house in California, driving home one night, a stop in traffic, and a drunk driver plowed into me and shook up my body.

And that my life changed in the blink of an eye.  Yeah, I developed something called complex regional pain syndrome a few months later. That’s a trauma to the nervous system. They at the time back in 1986, they had no idea of what to do with it. They did experiments on me, including surgery that spread the condition and the condition is agony and pain and burning and your skin texture changes.

You have temperature changes where my left hand, my dominant hand was icy cold.  And even though it didn’t feel cold to me, if anyone touched it, it would be icy cold. It would turn red and it swelled. And they did some surgery on me thinking they were going to cure the pain. And it spread that same condition throughout my body, um, all the way down to my left foot.

So what I had at that time was a wonderful doctor who looked at me and said, Bonnie, my mom has ALS and she has to have courage to live with it. And I’m telling you with complex regional pain syndrome, you’re going to need the same type of courage. And that was the best thing he could tell me. You know, because that’s what kept me going.

And it’s only recently that the American Pain Association identified what pain is and it can have an emotional and psychological basis. Not that it’s generating the pain, but it affects all parts of you that way. And when people say, Oh, it’s all in your head, they get insulted that I’m making it up.

But actually, the brain is in the head part of the nervous system, your spinal column and your brain. So in a way, yes, it’s in your head because the actual pain sensations are in your head. You’re not imagining it. So I always tell people, your pain is real.  And that’s, that’s what people say to me. I wish people would understand that it’s real.

had things like old fashioned tricyclics, which are antidepressants, and that was for the nerve pain. And then I also had muscle relaxants. None of that touched the pain. But in 2006,  they said, come on in, Bonnie, you’re a good candidate for high levels of fentanyl. which you hear about nowadays, and Norco, and I was living on six different things like that.

And that’s what I was living on, but it was prescribed, um, it was legal, and thank goodness I had great medical insurance because it’s very, very expensive.  And so I was on it for nine years. And that’s why I say, look at me and say that I look alive because when people hear, you know, most people die, you know, after a year or two, it’s a very dangerous medication to be used the way they wanted me to use it.

And so the way I understand it is, does it even really relieve your pain or do you just have Well, that’s the ironic thing. Even when they, they kept upping the dose to see what would help the pain. It helped low back from, you know, I used to have, I did have back surgery years before I had my car accident.

And so I’d always get kind of spasms. They took care of those spasms quite nicely. but not the CRPS symptoms at all. And it came with a host of other horrendous side effects. Um, you know, hyperhidrosis, which is over sweating in the body. And of course, having to live on laxatives. And then always worried about getting the prescription refilled when holidays would come around and they couldn’t give me, you know, refilled like two or three months in a row.

I had to go to the clinic every month. And then if I couldn’t get it, then I’d start going into withdrawals because, gosh, you know, darn it, uh, Thanksgiving came and the clinic was closed for three days in a row and I was supposed to get my script three days, you know, before. So I was at the mercy of the medications, which really weren’t helping me at all.

I’ve been off of all medications since 2015. I’m hearing many stories because the laws have changed and how doctors view prescribing that and they’re all really suffering trying to, because they were, some people would do well on opiates. I have to say that I can’t say nobody’s going to do well.

That’s between a doctor and a patient, not the legislator, I think has my personal view.  If someone’s on opioids, their family members and their caregivers should know about Narcan in case there is an unintentional overdose. And that’s really important.

How did it make you feel to be in pain 24 seven as a mom, as a wife, as a member of society?

I felt like I wasn’t part of society. I couldn’t, I had lost the use of my dominant hand. So I couldn’t be involved on the computer and all this new thing called social media. Yeah. I couldn’t participate while the rest of the world was going on. And I think the best way I can describe it is my sister, who’s very active and 10 years younger than me would come and visit me.

And I’d look at, at her car and it would have a bike hooked up on top and then some other equipment. And she was coming to see me on her way to go to a music show. And then they were going to go bike riding up the mountain. And then they were going to go to the beach. And I was like, I felt like I was 90 years old.

Being a mom in pain is very difficult. But I do have to say that my son and then my eventual stepkids have a lot more empathy and understanding and compassion because they had me in their life when I was in such terrible pain. So even though I felt like a failure as a mom, they’re, they’re all three are doing really well, but I really judged myself.

And I want to point out something about people who have chronic pain. We’re often people with really perfectionist attitude. We have to be the best.

And so what I do now is give myself grace. And if I make mistakes and if I don’t reach that high level, I wanted to, that’s all right. And that’s letting go. And that’s the mind stuff that you have to start working on when you have chronic pain.

Now, neuroplasticity is this wonderful big long word that everyone’s talking about. I discovered neuroplasticity in 2010 when my husband had a medical event. he had transient global amnesia. Now the mind through neuroplasticity is rebooting itself, getting back his memory.

Neuroplasticity is the brain’s ability at any age to rewire itself as if you’re a highway, picture a highway and you have all these freeways going in your head, but you do a sensory stimulation and you create healthier, more vibrant freeways.

And then the old ones that are transmitting the pain, when we’re talking in context of chronic pain, then they’re not going to be used. So suddenly your pain is going to be going down. And that’s how neuroplasticity needs to be applied to any good program with pain management.

But  it’s far more complex than mind over matter. It’s not a matter of saying, I’m not going to pay attention to this terrible spasm on my back. No, no. You’ve got to start retraining your body for chronic pain. You have a sensitization  going on, meaning it’s overstimulated.

And when people hear neuroplasticity, they immediately say, what’s the easy way? What do I do? And it’s a daily thing that you start giving input into your body using all your five senses. I started inventing ways for myself because I couldn’t find any a practitioner who was going to help me.

I got off all six pain related medications including Very high dose of fentanyl the Norco and all the tricyclics and plus that does the Prozac I got off of all of that I don’t have any medications that I take for pain now So  that is incredible and it does offer such amazing hope for people who are living with chronic pain So if you have someone face to face who’s at the very beginning of their journey, maybe they’ve thought that they were relegated to a life of chronic pain.

I’m going to talk to you and give you hope and seeds of hope and seeds of faith. Hope is yes. You’re going to be able to feel better and faith in yourself that you have the skills within yourself to work on yourself to feel better. You don’t have to spend a lot of money.

Time to go ahead and talk about the five senses. My first day out when I told my body, okay, this is it. You’ve got to change. Here’s what you’re going to do. I was walking my neighbor’s dog at the time. Because I needed some activity, some movement.

And besides my doctor saying to me, courage is going to get you through this. Is that my training back in the day was in what they call lifestyle medicine, which now has six pillars. Back in the day in the 1970s when I was in public health, there were only four pillars. It was physical, mental, social, and spiritual.

So I was doing movement under physical. That was my little bit of walking, which was very difficult. So that very first day I grabbed some sugar free mints.  I put them in my pocket, and I was wearing a TENS unit at that time.

So that day I changed the side of the electrodes, popped a mint in my mouth, and I would not listen to that voice in my head. And instead I said, Oh, this mint is cold. And I move it around with my time. Oh, it’s sharp now. And Oh, it’s melting. When I suck in the air through my nose, Oh, it feels cool. And that was, and then, you know, the pain would keep shouting, but I, I’d say, I don’t hear you.

And I kept, you know, responding to that. And the, the test came when I had to bend down to clean up after the dog and I put another mint in my mouth and I bent down and I didn’t feel any pain cause I was talking to myself about the mint. And then I almost forgot to throw the bag into a receptacle. I was so amazed.

And so that was the very beginning of, Oh my goodness. I can make a difference with my pain. And so, you know, the five senses, you know, visual, sensation, taste, smell, hearing, so I put special music in the next day. Every day, I kept adding every couple days another thing. But throughout the day I did other things besides just the neuroplasticity.

You cannot be grateful and angry at the same time, but it almost seems like you can’t hurt and enjoy a pleasant smell, a pleasant taste, a pleasant sound.

I teach people how to do the neuroplasticity and change their thinking patterns. It’s not magic and it’s not science fiction. It works, it’s neurochemical. When you think about things, it’s like a cat, you can have a release of neurochemicals that change your mood, which can change your perception of pain.

I talk to my clients and in the book I have something called D. O. S. E., which stands for dopamine, oxytocin,  serotonin, and endorphins.  And it’s to remind yourself throughout the day to build in things that are going to stimulate, I call them the happy chemicals. Endorphins, endorphins, endorphins.

And I call it baking your cake in the morning. Before you get out of bed in the morning, you make layers in your head. These activities are going to improve my day. So you don’t live randomly of saying, Oh, I’m in so much pain. I can’t move. You can’t, you got to get in the head of the pain.  You take charge of it.

Well, let’s talk about your book. It’s called Unwinding Pain and I love the title because to me, it paints a picture of many, many years of neural pathways that are going towards that pain and back and forth. If you have pain in your arm, that pain is getting sent to your brain and then re stimulated back and forth.

50 percent of the proceeds from the book will be donated to animal rescue organizations in the name of my neighbor’s dog Jingles. Who walked with me every day, and because of jingles, I peeled myself off the bed, even when I felt really bad because she had gotten used to me walking her,  and I knew she’d wag her tail. 50 percent of the proceeds from the book will be donated to animal rescue organizations in the name of my neighbor’s dog Jingles. Who walked with me every day, and because of jingles, I peeled myself off the bed, even when I felt really bad because she had gotten used to me walking her,  and I knew she’d wag her tail.

Up until that point in time, I had allergies to dogs. So it was a providential thing that suddenly I didn’t have allergies and my neighbor needed someone to be involved with his dog and I was the right person at the right time. So that was a blessing.

that’s cool because you didn’t have all the tools you needed if you needed to be outside walking a dog, and you didn’t have a dog, and you did not need the responsibility of caring for a dog, because cats will take care of themselves. But yet, A neighbor who had a need and you were meeting his need and the dog’s need.

I want to circle back to another important thing about, when you said when someone comes to talk to me and how can I make them feel better is that having purpose is really important. Having purpose and go beyond a diagnosis label that you don’t introduce yourself. Hi, I’m so and so with, with whatever fibromyalgia, neuromotor arthritis, lupus, that’s just part of what you’re dealing with. And help people find a purpose. And that makes all the difference in the world.  That is so important. And that is something that I teach in lifestyle medicine, to have purpose, to have social connectedness, to manage your stress and even nature.

And the reason Dr. Vickie keeps talking about lifestyle medicine is in my book, the two things that I really harp on is neuroplasticity and all the six pillars of lifestyle medicine in conjunction with  cognitive behavioral therapy and some of the other strategies that will really help you. More people are understanding about it and adopting a healthier food plan to cut down on the inflammation in their body. They’re learning about the importance of movement. And social connection is so important and sleep. I have a huge, huge chapter on sleep, which really can amplify your pain.

And even though you have chronic pain, believe me, you can learn how to sleep as you start lowering your pain levels anyway. So please remember that whether you buy my book or not, learn about sleep.

Cause it’s so essential. Like we can’t do without sleep and yet we have to educate ourself and train ourself. And so I have an episode on sleep, but I have an upcoming episode just on insomnia.  Well, I’m so excited about your book. I’m excited to share this hope with our listeners. And, you really have a step by step process that I think people who read the book can go through.

Oh, definitely. Okay. I, you, because your audio and you’re not watching this, but I’m holding up my, a long, a long paper chip or a long paper clip chain.

This is to learn a new behavior. And when I started doing my dog walking, I was starting from zero, you know, challenging my body, but I put a nail on the wall. In my kitchen. And I started putting paperclip in and added another paperclip and added another paperclip. So I got a chain and I knew by seventh paperclip, I was going to feel better.

And so I’ve used that ever since with many clients and they send me pictures. I have hundreds of pictures that come in, people’s paperclip chain. And they’ll tell me I did this new pain management behavior. Thank you for the paperclip chain, you know, idea. And so people really sparkle about that. And so I have them in different colors.

One gentleman started doing his in different colors.  Oh, and a neat thing, because he said, well, Bonnie, I have green to do this one. And then I have, you know, that’s my food. And then I have purple for my movement one. And then because I’m doing that sleep thing, how many hours a night in, but I’m making sure to down regulate my body.

So I fall asleep. So every time I remember that I give myself a paper clip. So you need,  I think  value and marking the journey. And I’ve heard it referred to as an Ebenezer stone that you pile up those stones and say, this is the place where. Things change, and I know in programs like, um, Alcoholics Anonymous or Celebrate Recovery, you get a reward token to say, you know, it’s a mile marker.

It’s a, I’ve come this far, and even if you relapse,  you can say, I did it. Yeah, I actually, I saw the clients I work with, I, they consider the work with me as, 12 step enhancement. And I know about their chips. They’re very proud. They call them the chips. And someone wrote to me, said, I just got my 25th year chip.

I mean, hallelujah, you know, so I know the term chip for that. And it is so true. And it’s a dopamine release too. You’ve achieved something, you know, it’s a wonderful celebration. Exactly.  Yeah. Celebrate success is for sure.

Well, anything else about the book or about neuroplasticity? Well, I have no financial interest in a company called Trainpain and they, Connected with me, uh, for pain coaching, and they have a targeted app for, um, neuroplasticity training, which I wish I had in 2010.

It’s a small device with wires and you tape it onto different parts of your body and you start identifying different sensations. And then there’s a, it’s a gamification where you, on your phone, you download a game and you progress through it, and what you’re doing is getting concentration in your brain to start thinking different about the neural pathways that are giving you the messages.

And then I’m at bonnielester. com if you want to go on and find out more information about me. And if you’re interested in pre ordering the book, you could go to Amazon or any of your favorite book selling places.

Plus I have an online store at unwindingpain. com. So that’s another way you could do it. And I’m on Instagram and people love my Instagram postings because I show my exotic birds and I have a famous garden and some, I’m very quirky. I make my own jewelry so that it resonates with some people. I’m at Bon Bon Lester. So follow me on Instagram.

I like it. Well,  I will be sure and put all the links in the show notes so that my listeners know how to find you. Uh, there is a lot of you were through the book and I appreciate that. And, and I’ve, I look forward to my listeners getting to follow you on Instagram and especially if anyone does have chronic pain knows that there is hope.

And to get started moving forward and, and attaching paperclips together and celebrating once in a while. Yes. It’s, it’s been great. Yeah. Well, so much for sharing your wisdom with me. This has been delightful connecting with you and chatting to your audience. Thank you for having me. I appreciate it.  It was great talking to you too.

Learn about Narcan

TrainPain App

Bonnie Lester

Order Unwinding Pain

Follow Bonnie on Instagram